Literally, I am. In 12 years I’ve only had one other complication. I hate when things go wrong,
There is no need to read into the title of my post. I’m still me. I still love life and my family. I’m NOT depressed. or angry. I’m just in lots of pain.
It all started on the 29th (thursday)- it came on gradually and continued to get worse but I was able to sleep some. Friday morning, I was screaming in agony.
There were no if, ands or buts about it. I had to go the doctor and I had to go now.
Except I don’t have a “regular” doctor. I just haven’t had any needs to warrant a regular doctor. My ladies parts doctor took care of the major stuff at my annual. I guess I need to find a regular doctor. It’s at the top of my list now. Wherever that list is …
Back to the pain. The doctors are still at a loss (see they are kinda LOST) and aren’t 100% sure what to do so they are running ever test possible and contacting the part numbers to track down who my doc used.
Just an FYI – Its taken me 30 minutes to write this much. I can’t stay focused and I keep have DEEP sleep dreams that I think last at leas 1-2 minutes and the dream itself a bit longer). It’s a strange feeling.
So parts. They are tracking down the part number of the rods in my back because they are broken — SEE BROKEN.
There is a good chance I will have surgery to remove all or some of the metal. (titanium to be precise .. IT’S NOT SUPPOSED TO BREAK)
It’s been a long 5 days.
It’s beoming really stressful. I can transfer myself because it hurts to Charlie has to do everything for me. It’s not really big stuff but it still sucks to need help with stuff.
I’m trying to do my scooting around and pressure relieving on my own.
It hurts if I move or not and I haven’t been told to stay still, so I think wiggling is best.
I also had to take off all my rings today. I took them off before my MRI and then put them back on. It’s habit. They belong there. So I put them back on immediately. More talk about surgery made me try to get them off right away. I don’t want to know what fixing broken rings cost. They eventually came off but I was afraid we’d have to cut. We did not
I feel like post is all jumbled up and probaby sounds like I’m out it, and that would be because I am.
I’m so appreciative that my mom is here taking care of the big boys and they I have friends wiling too help with drop off and another with pick up.
Typing this was difficult enough. I’m NOT proofreading it. sorry. I’ll conclude for now. Hopefully I will eventually be better again and back to me. It’s hard to be me with all the “good stuff”
h=
I so wish I was there to help. Much love sent your way. <3
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I’ve been praying for you…I wish there was something more that I could do.
First off, just dang OUCH! I can not imagine the pain you are in. Rods, broken, HOW? As if you do not have enough to get through in a day already. I am with you in spirit, prayers and lots and lots of good thoughts. Take it easy as you are already having to go slow.
My sweet, inspiring Priscilla. As long as I have known you I have never felt sorry for you. You have been triumphant in every way. But now, now I do. I want to take away the pain. I want to bang the doctors heads together and make them work faster, smarter. At least I can pray. Pray for the doctors and for your comfort level. I love ya girl!
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You are in my prayers, Priscilla. That sounds so horrible. It makes me think that your titanium rods weren’t titanium after all & if that’s the case I hope you are compensated for the pain and anguish this has caused you. It’s better to be “out of it” than in agonizing pain. I hope you feel better very soon.
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I’m so very sorry to hear it. 🙁 My situation isn’t as bad, but my spinal cord stimulator is “broken” at the moment too (they’re still not sure if reprogramming will fix it or if it needs to be replaced). It stinks when the medical parts that are supposed to last forever don’t always do that. I’m not blaming my SCS — I fell and I’ve only had it for 2 months so it hasn’t had time to scar into place — but it stinks nonetheless.
I’m thinking of you…. you’ll be in my prayers.
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I understand back pain, m’dear. My experience has been that pain hurts! I’ve lit two extra candles for you, sugar. Best wishes always!
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thinking of you and praying for a speedy recovery and lot’s of answers soon!
sending all sorts of prayers your way, Priscilla. xoxo
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I’mso sorry that you’re hurting. I think of you often and miss seeing your smiling face in my feeds.
Feel better soon, friend.
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You’re in my thoughts and prayers, dear. *hug*
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Amazing post considering what you are going through. Cilla (I hope you don’t mind that name but it’s what Brookie calls you and it’s grown on me) you know how very dear you are to me…the fact that you could write this in your pain…WOW!! I think about you non-stop. I am worried, but you are fighter….a STRONG fighter!! You are someone that I lean on for strength, and you have to keep on going on. One test at a time, they will figure this out and what’s best. It’s gonna be a hard battle, but you are going to come out the other side (un-broken). I am so honored that you are a true friend of mine…I am worried and scared for you. But, I know this is all going to work out…somehow. I am here to do what I can for you guys, Just let me know what you need:) LOVE YOU GUYS!!
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Hey! I hugged you when you were radioactive…that’ gotta mean something, right!! LOL Love ya, Laurie
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Prayers and best wishes your way!
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Sending many well wishes 🙂
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aww -Priscilla – so sorry 🙁 I I hope you get some relief soon!!!! Many prayers going your way!
I am so sorry you are in such pain. I hope the doctors find answers and you are back to being you again soon!
Thanks for sharing your family photo you look like a happy family..God bless always..
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Thinking of you and sending good vibes!
If you’re too tired or too frazzled to type, maybe try speech recognition software? I use Dragon Naturally Speaking sometimes, myself!
Lorna
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I wwas wondering iff you ever thought of changing the lawyout of your
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But maybe youu could a littyle more in thee way of content soo people could connect with it better.
Youve got an awful lot of text for only having one or two images.
Maybe you could spqce it out better?
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