You can read PART TWO Here. We still have NO ANSWERS.
I wanted to post an update on NATHAN.
His eyes started crossing last week and it kept increasing in frequency, so we chose to go straight to an ophthalmologist. We were able to get an immediate.
We were net expecting the outcome we got. I was thinking you might have to wear a patch sure do eyedrops or worst-case scenario strabismus surgery. However, She ordered a brain MRI and sent us straight to Dell children’s. His optic nerves were swollen. Also referred to as papilledema.
The MRI showed no tumor but He has NF1 (nuerofibromatosis) which we suspected due to the fact that I have it and he has 6+ cafe au lait spots, but that doesn’t explain the swollen optic nerves (papilledema) the random strabismus in both eyes.
They did spinal tap And those tests are all normal.
We finally got a room and NATHAN was how to eat around 1 AM . Poor guy was starving.
They are testing his thyroid due to a strange reflex test in left leg.
We will doing an MRI tomorrow on his spine.
For now we wait patiently while the confused doctors try and solve this puzzle.
Nathan has been quite the trooper and a good little patient for the doctors and nurses.
sending up prayers for Nathan and wisdom for the doctors to find out all that is going on. Love and hugs
Sending love and prayers your way. Thinking of your sweet family and praying he feels back to his old self soon and you find answers
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Thinking & praying for your whole family. I’m so glad you shared. It’s easier to go through tough times when you have support. Hugs & love to you!!!
Priscilla, I’m so sorry to hear your little guy is dealing with this medical mystery. I hope you get answers soon. I’m keeping you all in my prayers.
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Oh man, I’m sorry to hear you and your family are going through that right now. Sending you lots of prayers, love and positive energy! xo
Priscilla, thank you for sharing. Our thoughts and prayers are with you and your entire family. If there is anything Sandy or I can do, please let us know, now or in the future.
Scary stuff, I’ll be watching for updates, wishing for the best possible outcome. Hang in there momma.
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Thinking of y’all. Sending prayers and chi. #XOXO
I hope everything goes well Priscilla! How scary for you and him. I’ll be sending my prayers to you and your family. I’ll be reading for updates.
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that sounds so scary!!! Will pray for you guys and hope they figure out something soon- and that it’s no biggie. 🙂
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My dear Priscilla—
So many happy memories of you and the little ones from Nordstrom days. Now, my prayers are with you all as you go through this journey. My prayers are with you all, as are the sentiments of your many friends! Much love –Jacque
You sure have your hands full. Not knowing is such a difficult place to be. Godspeed.
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What a little angel. Prayers for a quick diagnosis and a VERY speedy recovery.
Oh Priscilla, you must be beside yourself with worry. Hopefully everything will come back normal and the diagnosis will be something simple and treatable. Wishing you and your family strength.
{{hugs}} sending love and prayers!
What a tough little boy you have there. {Some of those tests would scare the crap out of me}Praying for wisdom for the doctors, peace for you and treatable curable answers!
Sending lots of good thoughts for Nathan and all of you. He is adorable and so brave.
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Oh goodness what an ordeal. He’s for sure a little trooper. Will be keeping you guys in my thoughts!
What a trooper! Prayers for a quick diagnosis and easy treatment. My daughter had surgery at 2 years old for strabismus in both eyes (due to hydrocephalus) and it made all the difference in the world for her. Prayers for your sweet Nathan!
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Please tell your little fella (and you) to be strong. Many are rooting for him.
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Such a Tiny Trooper .. I’m definitely sending Prayers your way. Though it might seems tough and you feel alone .. just remember there are people who love and care fro you
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I hope you get some answers soon. It can be stressful not knowing things when it comes to the health of your child.
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I am so sad that your child has to go through this. Prayers and hugs for healing and strength.
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Poor sweet boy! I hope they get you answers soon. Scary not knowing what is wrong.
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Sending huge prayers to you all. I know how awful it is to wait on tests and have no answers for your child. We are going on year 2 of no answers as to why my daughter doesnt grow right.
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I am so sorry your family is having to go through this. Please keep us posted on the tests and the findings. Hugs mama.
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what a trooper! sending prayers and good vibes your way!
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Having a sick child I think is one of the hardest things in life. I hope everything works out for the best.
He is such a brave boy! We were in the hospital last week with our little one, and it is no walk in the park. I hope you get answers.
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Thinking of you guys. I know a lot of people who have had surgery to correct strabismus! Sending love and prayers!
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Right now we are just hoping that all it is, is strabismus. We are really worried about the poor reflex test and the optic nerve swelling.
I’m so sorry to hear about your son’s battle with these health issues. I know it must be hard not knowing what it is. I’m keeping your family in my prayers.
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It is a scary thing – especially when it’s your child. I will pray for him.
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Your little one is so adorable! My positive thoughts and prayers are being sent your way!
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Poor little guy! My thoughts and prayers are with him, you and your family!