First things first. We do not have any NEW news on Nathan. He will see his ophthalmologist again on Monday. Let's hope the optic nerve swelling she saw his GONE. If so that means we just move forward with the strabismus. Speaking of the strabismus, it's getting worse every day. Poor little guy was ... READ the POST
Nathan’s NF1 story summarized
You can read our Hospital posts here and here. I thought it maybe easier if I summarized our week, so it was easier to follow than the two posts I shared when we were in the hospital. I was diagnosed with NF1 around 2002. I was in my early 20s. I didn't meet the really meet ... READ the POST
Tae Kwon Do: Blue belt and 2nd Degree Black Belt
My two bigger boys did it again. They continue to excel and advance in tae kwon do! We couldn't be prouder of their dedication and we couldn't be happier with Rise Martial Arts and the instructors that have guided our boys on this journey! Thankfully we had testing and the awards ceremony before ... READ the POST
Nathan: so many unanswered questions
We just got home, but you can read PART ONE HERE, things may make a little more sense and it should answer any questions we can answer. There is absolutely no reason for palpilledema that could be found. Nathan's spinal MRI was normal, which is great. His pressures during the spinal tap were ... READ the POST
Sisterhood of The World Bloggers award
Michelle, from Grammie Time, nominated me for a blog award! I haven't received one of these in years, so YES I accept! Thank you, Michelle. These are always so much fun. I nominate: Traci Shannon | Abryamayan Avenue | Overextended April 1. What do you hope to accomplish ... READ the POST
Nathan: Strabismus and papilledema
You can read PART TWO Here. We still have NO ANSWERS. I wanted to post an update on NATHAN. His eyes started crossing last week and it kept increasing in frequency, so we chose to go straight to an ophthalmologist. We were able to get an immediate. We were net expecting the outcome ... READ the POST
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